I'm writing this just after midnight. So I'll be quick.
Over the last week the mother has been acting strange. More chatty, displaying a juvenile sense of humour, fixating on TV programming - not the dramas she watches, but the programming in general. She has been saying things that don't make sense, connecting seemingly unrelated events, making up weird conclusions about things (the TV station is closing down) and coming up with nonsensical explanations for these unwarranted conclusions (.. because they have no money so that's why the mints now cost $300 instead of just $100 like they used to in the past - and they can't get local actors because the Australians are paying them more money to advertise their shows so that's why they have to close the station). What? So basically she isn't making any sense.
This is worrying because 1) It reminds me of my dad's battle with dementia, 2) It seems to have progressed quite rapidly - in the span of a week or so, 3) I can't tell if she is just randomly making things up or if that discomfort in her foot / chest / head / neck / shoulder / knee is real.
The boss doctor man has written up a referral for a geriatric specialist. He doesn't think it's dementia, but he *is* worried it might be a micro stroke or subdural bleed from the fall she had in December. Apparently it can take months for a slow bleed to show up a personality change among other things.
We're waiting for the specialist clinic to call me back with an appointment date but in the meantime I'm stressing out at having to deal with her incessant talking and very strong opinions about how the TV people are irresponsible because they stop the show before it ends. (She can't tell that it's a commercial and thinks the show has been cut off.) And when it continues after the commercial break she gets mad because they can't make up their minds if they want to show it or not, stopping halfway and starting up again when they feel like it. She's really mad at them, let me tell you.
In the past, as I've mentioned to BIKSS, my brain used to keep me awake during periods of stress. I'd be up way before my alarm rang, I'd sleep for 2 hours and wake up for no good reason (sometimes one has to pee, and that's a pretty good reason imo), or it would take me forever to fall asleep etc.
This time round, perhaps because I know we have a plan, all my body wants to do is SLEEP. I've been napping and napping and when I *am* awake I'm yawning and yawning, and constantly tired. On the way to dinner earlier I said to BIKSS "I've been yawning (he said he noticed), and that's AFTER a solid 2 hour nap, and right now if you put me in a comfy bed and turned down the lights I would happily go right to sleep again." He is familiar with this phenomenon as HIS body has always reacted to stress this way - stress = sleep.
And speaking of dinner, that was BIKSS changing his plans to help me cope with being around my mother. I think a lot of it is fear - about something we are only able to guess at and not have a definite answer for. Fear, that if this isn't physiological then it might be a very quick progression of dementia. Fear, that I won't be able to show her the love and patience that I know I want to, and that I know she needs.
And I cannot stand it.
Last night before going to bed I said to him that if he could change his plans, I could really do with him coming over to have dinner with us, or we could take mum to eat, if only because I didn't know if I could handle being alone with her all afternoon / evening. My caregiver was going to be out as it was her day off, and I didn't think I would be able to last all day and night with mum's current state being what it is.
He came by, got us, and we went for a quick and simple dumpling soup (and noodles for mum) and chicken chop dinner, then a stroll along the beach. She had a good time, enjoyed looking at the boats, admired the lights coming from the long stretch of chalets, reminisced about her youth and how they would come to the beach to fish and camp overnight.
Then we went home and that was 3 hours of reprieve for me, from having to face her constant chatter and strange made-up logic alone.
He recognises that it took a damn lot for me to open my mouth and ask if he would come to my rescue for dinner cos 1) Usually if he's made plans with the family then there's a high chance he can't back out of it and I won't bother asking because I hate rejection (especially when the reason is his family); and
2) In the first place, I just hate needing help - especially when it's an emotional type of situation. I mean, I won't ever hesitate if it's brute force I require and little tiny me just doesn't have the strength / height or even know-how to do something. But when it's cos I feel overwhelmed, afraid, unable to cope, it's really hard for me to say "I need support". Somehow over the years I've programmed myself to think that support is for the weak. And I hate being weak.
But hey, at least this time I managed to open my mouth and ask for it. But that is also a pretty huge indicator of how much this whole situation is affecting me.
Fingers crossed they figure it out soon and find a thing that they can fix. The alternative is just too much for me to imagine right now.
My mood pic today ~